After finishing my involvement in the BrainStorm Phase 3 trial I had the freedom to create my own treatment path once again. I purposefully headed into uncharted territory, as the current map of ALS treatments is, frankly, quite underwhelming. To break new ground I am combining a number of treatments that each have scientific or clinical data to support their potential effectiveness. I want to be clear that I'm not recommending this protocol for anyone. My doctor is supporting me and will be following me closely. Please consult with your own doctor before trying any of these treatments.
I believe I will be the first person in the world to combine the following treatments.
In the fight against ALS, stem cells are the big guns. I went halfway around the world to try them.
This drug has been around for over 20 years, but is just starting to look promising as an ALS treatment. It's not available in the U.S. yet, but there are ways around that...
This is an over-the-counter supplement that is currently the focus of an active clinical trial. It's easily available and low cost.
It's contained in a product you'll find in your local grocery store, at a fraction of the cost of a drug that was part of a clinical trial.
The old stand-by. The first drug approved for treating ALS.
In 2017 it became only the second treatment approved for ALS in the U.S. Exciting, yes, but its effectiveness for all ALS patients is not clear and it is a challenging treatment protocol.